The Post-Polio Institute is the only facility in the world specifically designed, both in terms of its physical facilities and programs, to care for polio survivors with Post-Polio Sequelae. The Post-Polio Institute is in separate building from Englewood Hospital and Medical Center so that polio survivors don’t have to be in a hospital for treatment.
The first step for polio survivors is diagnosis. At The Post-Polio Institute, the multi-disciplinary team includes a physician, physical therapist and a psychophysiologist who together perform the initial evaluation.
Dr. Richard Bruno, Director of The Post-Polio Institute and The International Centre for Post-Polio Education and Research, and Chairperson of the International Post-Polio Task Force, performs a psychophysiological evaluation that explores the practical and emotional impact of your new symptoms and documents the physical and emotional stressors that are the leading causes of PPS. A physical medical examination that documents your medical history, new physical symptoms and rules out other medical problems that could be causing your new symptoms is also be performed, along with a physical therapy evaluation.
The evaluation last from 1:00 PM to about 5:00 and costs $1,000, although your actual cost depends on your insurance coverage. INDIVIDUALIZED TREATMENT PROGRAM
Patients who live within easy driving distance of Englewood are treated as outpatients. After the initial evaluation polio survivors receive physical and occupational therapy, nutritional counseling and stress-management / behavioral psychotherapy once a week for about 5 weeks:
• Physical therapists assess muscle weakness and pain, evaluate posture and walking as well as assistive devices, past and present, such as braces and crutches;
• Weekly individual behavioral and stress-management psychotherapy sessions will help you identify and reduce stresses that trigger PPS and help with the often difficult process of making the changes in your lifestyle that are necessary to treat your symptoms;
Dr. Bruno will meet with you and your family during your fifth therapy session to discuss your individualized treatment program and the life-style changes and assistive devices you’ll need to treat your PPS.
Follow-Up Clinics: For one month after graduation from the treatment program. Local outpatients will continue to keep daily logs. They return for Follow-Up Clinics at 1, 3, 6 and 12 months after graduation, and once a year thereafter. At the Follow-Up Clinics you will meet with your PPS treatment team to discuss how you are managing your PPS symptoms with lifestyle changes. Modifications and additions to the symptom management program are made and any new symptoms or issues are discussed. Patients are also encouraged to call or meet with their treatment team members at any time that a need arisesLONG DISTANCE EVALUATION and TREATMENT
Since far too few clinicians know how to diagnose and treat PPS, polio survivors from California to New England, Canada to Peru, from Denmark, Turkey, South Africa and Beijing have come to The Post-Polio Institute for assessment and treatment.
Long distance patients receive the comprehensive medical examination, a physical therapy evaluation and a psychophysiological evaluation that lasts from NOON to about 5:00 pm. Dr. Bruno develops a treatment plan and consults with you, your local physicians and therapists by phone and e-mail to implement the plan and coordinate care after you go home. The fee for the entire assessment is $1,200, but your actual cost depends on your insurance coverage.
If you can't afford the flight, try angelflight.com. Corporate jets will sometimes fly you for free and you land just 10 miles from The Post-Polio Institute.INSURANCE COVERAGE
Medicare pays 80% of the charges for evaluations, physical therapy and psychotherapy. Although The Post-Polio Institute does not accept other insurance because so many of our patients are from out of state, we will submit all bills to your insurance company for you and help you get reimbursement.
You will need to contact your insurance company to see if it will cover treatment at The Post-Polio Institute. You may need separate referrals from your personal in-network physician for the evaluations and treatment if your managed care plan or HMO requires them. We will always work with you to obtain authorization for evaluation, treatment and assistive devices.EVALUATION FOR DISABILITY
Polio survivors often have great difficulty finding a knowledgeable doctor to provide a report for their Social Security Disability applications. As co-author of the Social Security Administration's POMS for Evaluation of the Late Effects of Poliomyelitis (24580.010) and the 2003 SSA Ruling for Post-Polio Sequelae, Dr. Bruno is intimately familiar with the Social Security system and disability process; not one PPI patient has been denied disability. Dr. Bruno will work directly with you, the Social Security Administration and your members of Congress as you apply for SSDI or fight a denial. The $600 fee covers the report generated by Dr. Bruno after your evaluation plus all of his interactions with SSDI and private insurers' adjudicators and doctors.THE INTERNATIONAL CENTRE FOR POST-POLIO EDUCATION AND RESEARCH
The International Centre for Post-Polio Education and Research, companion to The Post-Polio Institute, is the world’s foremost PPS research center. No one center has studied or published more scientific articles on so many different physical and psychological aspects of PPS. We continue to conduct research on PPS, but this research is totally separate from the treatment you will receive.
Siendo que tenemos muy presente como Organización Civil nuestra dirección en representar a las personas que padecen de secuela de polio y a sus familias, a los que ya padecen del Síndrome de Post Polio (SPP)